Roz had a rash and got one of the doctors to have a look at it. She was told it was not too bad, but could be a sign of host versus donor rejection. Guess how you feel when a doctor says that a few days after a transplant. So Roz was quite upset. Later the lady Professor came around, had a really careful look and said she thought it was not a problem. A dermatologist inspected Roz later and said it was not a problem and was not the host donor issue. So for hours the patient worries unnecessarily. She also got depressed yesterday morning, as she really just wants to go home, and the staff were very busy with other people - so she was on her own until Barbara arrived at 2:00. It shows the importance of relatively constant supportive care - the nurses, doctors and other staff have been great, and we have been there as long as they will let us.
She is also still not eating much. Linda (a nurse), Barbara and I had a chat with her, we got her some Heinz soup, had it heated up and she ate it. She has now down this twice. Part of the issue that many patients get is that they can eat food that they have chosen, and have control over. More soup today. More walks. More exercises.
There is much talk about discharging Roz, so I went down to Devon by train, slept overnight on the farm and brought the car up to London. So we are ready. Its a matter of stabilising her potassium, because the anti-fungal stuff she has causes some people to get rid of potassium from the body through your urine.
We were upset to her that Roz's Auntie Pauline has had to go into hospital with gall bladder stones - very painful - and she will need an operation.
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