If you would like to help MDS Patients

MINI 2 the Arctic

 

It is difficult to imagine the trauma of being diagnosed with a life threatening illness, which you have never even heard of and for which there are no easy cures or quick remedies.
Myelodysplastic Syndromes (MDS) are a group of diverse bone marrow disorders, in which the bone marrow does not produce enough healthy blood cells and can lead to life threatening, incurable blood cancers. Patients often rely on blood transfusions to manage symptoms of anaemia and fatigue. The treatment of MDS is very difficult and the only cure is a bone marrow transplant for those patients young enough and who have a suitable donor.
The MDS UK Patient Support Group, provides an invaluable life line to patients encountering a rollercoaster of emotions. The online patient forum, ensures that fellow patients can share their experiences and lessen the feeling of isolation. They also organise patient meetings with specialist speakers, distribute information and raise awareness of MDS to patients, carers and health professionals across the UK. They play an active role in Lobbying parliament to ensure that MP’s are aware that MDS patients need access to drugs comparable with those available in most European countries, together with discussions with NICE.
Sadly, 2000 people are diagnosed with MDS in the UK  each year. MDS can affect all age ranges and initially may have no symptoms.

If you would like to help with a donation, anything no matter how small or big is greatly received,  click on the MINI link above

Or, even better, if you would like to be a donor then click here