Tuesday 16 July 2013

Possibly last dose of Azacitadine

The transplant nurse told me I have a choice of two donors, both with 100% match. One is in late twenties and the other early forties.  So this is great news, if a bit scary that I have no real choice but to go through such a risky process. 

I am on Azacitidine for 7 days, which might be the last dose I have if the bone marrow tests shows very low blasts and if the transplant can be arranged for early Sept. But it is possible they might give me one more dose, just to keep the blasts down if scheduled for later. Or, I might have preconditioning chemo. The Prof and my consultant will decide in a few weeks

Meanwhile my bruises and sprained ankle from the cow episode are getting better - but I have three or four large areas of  swelling on my legs which might take 4 weeks to be re-absorbed.

Wednesday 10 July 2013

Clinic

Rosalind is very well and came to help on Saturday when we had the ward around for a walk around the farm and BBQ

I had clinic today. My blood counts are not brilliant, but OK and so I will start another bout of chemo next Monday. The consultant thought my body is not going to stand full strength chemo for many more months. Then I have another bone marrow tests before deciding which protocol to follow for a transplant

Donors
Seemingly I am bog standard Anglo Saxon and there are 'loads' of potential donors on the books. Three people are having detailed tests done and we should have a positive outcome in the next 2 to 3 weeks. So it was a good thing having a mum and dad from Sheffield all those years ago.

So the 99% likelihood is that I will be an inpatient in Bracken ward ( the new transplant ward) in September either having

1. Preconditioning chemo before a bone marrow transplant in October
2. Or if my blasts are fully under control with the Azacitidine, then straight into a transplant in September

Meanwhile we have made loads of hay today