Wednesday 27 October 2010

Roz goes in for her transplant after lobbying MPs in the house

Rosalind came up to London to be admitted for her 'conditioning chemo' and transplant yesterday. The bed at Kings was not ready early on so she and her dad, and her partner Steve went to Westminster to the lobby area which is between the house of commons and the house of Lords. Richard's MP, Gary Streeter, kindly invited Ros and Richard to his office, had a long chat and took away a whole series of actions to assist the MDS group in getting NICE approval for azacitidine - see link for details.


 We also met with the personal assistant to Geoffry Cox, Roz's MP, who will also support the lobby.

Roz and Steve then took a taxi and went straight to the hospital, where she was admitted later in the evening.
This morning after X rays and other tests she starts her her conditioning chemotherapy, which will take 7 or 8 days. If all goes really well she might be out in 4 weeks, otherwise it will be 6 to 8 weeks.

Meeting at the lobby really helped Roz, as it kept her mind active and very positive prior to the admission. It is no use letting this get you down. Just be positive and let them get on with it.



 

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