Follows the fortunes of daughter and father who both have MDS myelodysplastic syndromes. Start with the oldest entry if you want to read the whole story
Wednesday, 7 September 2011
Tranche three of Azacitadine starts Monday
I had some tests today which confirmed that I will start with AZT again on Monday. Same again - each day next week, then Monday and Tuesday the next week.
After several days of feeling much better and full of beans, I have felt more tired the last three or four days. My blood results showed this, in particular that the neurtrophils had come back down from 2.0 back to being neutropenic at .9
Mind you that is not bad - I could live with the restriction of .5 to .9 indefintlty if I had to
So once more into the breach
It's not bad - just a pain in the stomach
I am gutted that I am not up to going to the funeral of a dear friend whose funeral is a long journey away. So this MDS like many other deseaes does mess with your life.
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