Rosalind went to see her consultant in Plymouth today. She was not only told she was doing really well, but they also went on to discuss things like:
- She can go on a plane!
- She can go swimming!
- Having her childhood vaccinations again (Yep- you don't really think about them do you?)
- And even dying her hair - which us lads might not understand but ...
All her tests came back well, but she has to wait for her
chimerism test which shows how well the top-ups have worked.
Richard (me) is preparing for his first course of
Azacitidine. This will be the first use of
Azacitidine in Devon and probably the South West for treating MDS. So there is :
- Having normal blood tests and one last venesection
- Special bood test (again) to send to Anthony Nolan to check for potential unrelated donor
- Getting teeth checked and cleaned (to stop minor infection becoming a threat and because he will not be able to go to the dentist again for a long time)
- Getting new glasses so he can work, read and watch day-time TV (What a thought)
- Preparing very clean rooms away from the 'farming' side of their home
- Starting to stock up on super neurtopoenic food and drink eg pasteurised yogurts, Bottled mineral water with gas, long life orange juice
- And getting fitter by walking around the farm
- And keeping motivated and positive
Meanwhile we are down sizing the farm, selling animals etc to make recovery manageable.
Richard and Barbara had a great holiday in Iceland and came back relaxed. A few more photos below
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| The Small Geyser in Southern Iceland |
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| The third largest Waterfall we saw |
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| Hot springs in the evening sun |
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| Stuck in the fog off near the Arctic Circle looking for whales | |
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