Day 98 - The Hickman line comes out

Last week Roz and I had our bone marrow tests. Afterwards we did some shopping in London and had lunch and afternoon tea in John Lewis. That is the first time Roz has been able to have a meal out - given the smell of which had been making her nauseous. It was a very long and tiring day, as we had reserved 4 hours in case she needed any treatment - which she did not need

Yesterday Roz went to the consultant in Plymouth and she said that Roz need only come to clinics every two weeks, instead of every week.


She still needs regular blood tests just in case the  CMV comes back and to monitor rejection

Both hospitals agree that the Hickman line can come out - so that is coming out today. Another major milestone, which will remove another potential source of infection. It does however mean that blood tests etc will need a needle in her, like normal folk.

Our friends from the States left today after we all had had a great time - even though the weather was awful. We took them to see Roz and the family at the weekend. We had a lovely lunch in Tavistock, and then after a bit of shopping had afternoon tea in the Bedford hotel. Lois had to check out the 'Candy shop' for her daughter back in the States - seen her getting help from Isabel. Then we played with the kids and chatted back home.

Roz still needs a lot of help, so Steve's mum has been down all week - which is a big help


Roz's son has met the Doctor and has a blood test - waiting results. He seems a lot happier.

I am still much the same - except I keep getting Gout, which is very painful, and the painkillers that deal with it inhibit white blood cell production !! I also broke a tooth which needs extraction - but the doctors think I can manage that, even with neutrophils at .6.