Individual room showing corridor |
Until recently MDS patients needing an unrelated donor transplant
from places like Devon and Cornwall have tended to go to a Centre of
Excellence such as Kings College Hospital London, as did Rosalind. This can
be a logistics nightmare being very costly and adds to the stress level
Derriford hospital, run by the Plymouth Hospitals NHS Trust,
has had a haematology transplant ward for many years – Birch Ward, but the
facility level was only sufficient to enable you to have your own stem cells
back, or those of a sibling. Your own stem cells are not an option for MDS
patients. I have been attending there for several years, going to Kings for
occasional chats with the Prof.
Over the last seven years Derriford Hospital has been
working towards creating a new unit, Bracken Ward, for unrelated donor bone
marrow transplants. A charity called the
PDLF – Plymouth and District Leukaemia Fund - has raised hundreds of thousands
of pounds to add those extras that the NHS could not afford and supplement this
new high-tech transplant ward. We managed to raise a few thousand.
In parallel, staff passed all the training hurdles to be approved to do unrelated transplants and started doing them in the adjacent Birch Ward – now also being refurbished for day cases.
In parallel, staff passed all the training hurdles to be approved to do unrelated transplants and started doing them in the adjacent Birch Ward – now also being refurbished for day cases.
The new ward opened for business a few weeks ago to rave reviews
by patients, carers and staff.
The success of this venture is down to many things, in
particular excellent planners, the dedicated team of Consultants, nurses and
other staff who designed the ward and the PDLF. A small group of patients and
carers, including Rosalind and myself, were asked to provide input and feedback on
every part of the development.
Some of the criteria
were
Fantastic bio-security - the individual rooms have their own
air-conditioning, filtration units and special barrier doors to minimise risk
of airborne infections.Special attention to enable each room to be kept clinically spotless
at all times.
Showing entrance to ensuite bathroom |
Comfort. The beds
are great, and the patient and carers both have nice looking comfortable
chairs. These were tested out by patients and carers before being bought.
Tables that fit over the bed were carefully selected for ease of use,
appearance and bio-security. And the lighting
can be gentle, normal or functional as needed.
Each room has been designed to enable patients to stay there
without ‘climbing up the wall’. They are spacious and cheerfully decorated.
Colour schemes were tested out with patients and carers, including those
feeling sick when colours and smells take on a whole new meaning. Consideration
was given to what patients could see from their bed, from their chairs and through
the windows. If you have ever been cooped up in a small room for weeks or even
months you will understand.
Entertainment and
technology. High-end easy-to-use smart televisions for watching TV,
displaying films, slides shows, providing free Internet access, etc. Patients can bring their own family photos or
videos to display on the screen and are encouraged to use phones, IPads or
other devices to keep in touch with family or friends through things like
Skype. A school in Tavistock is adding to the photographic collection of scenic
views which can be watched on a gently changing picture show.
Spacious en-suite bathrooms |
Large fully equipped en-suite bathrooms for each room are a
major bonus. If you feel rubbish, you might need facilities quickly, with the
ability to have them cleaned thoroughly very easily.
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Decoration – each room has its own special art work. Some of the rooms were designed especially for young patients with a more appropriate look and feel, and more Hi Tech facilities to meet the needs of the modern Internet savvy person.
Functionality – all the mod technical cons and backup you need in a
state of the art transplant ward.
Nurses Control Centre |
Schematic showing 10 transplant rooms entered via dual robing areas |
I will let you know what it is like as a patient at some future posting - the earliest would be November is my guess
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